The auction will be open for bidding from:

Wednesday, October 29th @ 12:00 PM ET to Monday, November 3rd @ 12:00 PM ET

All funds raised directly accelerate CACNA1A research for treatments and a cure.

How can you help?

Become a CACNA1A Treasure Hunter!

We're thrilled to announce our 2nd Annual Bid-for-a-Cure Online Auction! This year, we aim to raise $20,000 to fund groundbreaking research, raise vital awareness, and provide essential support for individuals affected by CACNA1A-related disorders.

We'd love your help gathering:

  • General Appeal Items – shippable or usable anywhere! (Examples: gift cards, handmade items, virtual experiences, travel packages.)

  • Local Favorites – experiences, products, or services that highlight YOUR community. (Examples: restaurant gift cards, museum passes, spa packages, sports tickets, themed gift baskets.)

No matter where you live, your contribution can help us connect with bidders both locally and globally. Each city will have its own featured section in the auction, making it easy for supporters to browse local treasures.

It’s incredible how willing people are to give when they know their generosity brings hope to children and adults with CACNA1A. Every ask matters. Every item matters. Every bid brings us closer.

Thank you for your help!

Click Here to email us about donating an item to the auction

  • The auction opens on Wednesday, October 29th at 12:00 PM EDT and closes on Monday, November 3rd at 12:00 PM EDT.

  • The Foundation aims to have at least one treatment for CACNA1A-related disorders in the clinical trial pipeline within the next 3 years. All donations will fund critical research, directly accelerating treatments and a cure for CACNA1A-related disorders.

  • Here are the items you will need to make a request from a potential donor.

    1. Letter of Request for you to customize.

    2. The CACNA1A Foundation's donation form

    3. The CACNA1A Foundation's IRS Letter of Determination showing nonprofit status

  • Use this form to donate an item (click here)

  • Check back to view the auction site.

  • Yes, Of course! Every donation puts us one step closer to solving CACNA1A-related diseases. Please donate HERE. We are so grateful for your support!

About us: In 2020, a group of dedicated parents connected through social media, united by their determination to find a cure for their children who all struggled with CACNA1A-related disorders, a rare neurodevelopmental genetic disease. Their shared vision led to the creation of the CACNA1A Foundation, a powerful movement driven by passion and hope. Today, this growing community is making remarkable strides to reshape the futures of those affected by mutations on their CACNA1A gene. Our progress is a testament to what can be achieved with unwavering determination, resilience, and a deep well of love.

Significant milestones over the past four years include:

  • Launching a natural history study and collecting vital clinical data to better understand our patient population

  • Building a robust preclinical research portfolio to lay the groundwork for therapeutic developments.

  • Fostering an open science culture, encouraging collaboration, sharing data and resources, and breaking down barriers within the scientific community to accelerate progress toward effective therapies

Yet, much work still needs to be done…and our efforts require significant funding. Your support will drive groundbreaking research, bringing us closer to new treatments for our kids. Together, we can turn hope into change.

Please join us and make a difference in the lives of our children…Every dollar helps. Thank you for your commitment and generosity!

What is CACNA1A? CACNA1A is a rare neurodevelopmental disorder caused by changes in the CACNA1A gene, a calcium ion channel gene highly expressed in the central nervous system and cerebellum. These changes disrupt electrical signals in the brain, leading to various neurological issues, including global developmental delays, intellectual disability, autism spectrum disorder, epilepsy, ataxia (balance and coordination difficulties), hemiplegic migraines (stroke-like episodes that result in coma, brain swelling, and skill regression), speech and language disorders, and eye movement disorders. The estimated incidence rate is 1:11,700 (Lopez-Rivera et al., 2020) and individuals come from every continent.

Learn More: The CACNA1A Foundation is a parent-led, 501(c)(3) nonprofit established in 2020 to improve the lives of individuals affected by this rare neurodevelopmental genetic disease through advancing research, supporting families, and raising awareness. The Foundation’s efforts are focused on accelerating progress toward therapeutic development that will have the greatest impact on the CACNA1A patient community. Our tax ID# is 84-4985747.

Thank you for your interest in supporting the CACNA1A Foundation’s Bid-For-A-Cure fundraising event.

If you have any questions, please email Lynn Tusa at Lynn@cacna1a.org.