Individual CACNA1A stories help us raise awareness and advocate for funding and research. They also help newly diagnosed families feel less alone in the world of rare diseases. Please consider sharing your story and making a difference in the lives of families affected by CACNA1A-related disorders. Pictures and videos, even without telling your story, are immensely helpful to accomplishing our mission of raising awareness, funding research and supporting families.

To submit photos or video clips for use on our website, brochures, social media, and/or other promotional materials, please use this link.

Tell us your story here. Please share as much or as little as you would like. Most fields are optional. Please use the following questions as a guide.  

Photos are greatly appreciated to accompany your story. After submitting your story, please email photos to info@cacna1a.org