On May 16th and 17th, thousands from across the globe will run, walk, and roll for a cure. Be part of this heartfelt, fun-filled, inclusive weekend.

Why We Move:

Six years ago, a group of parents refused to accept the status quo for their children. They founded the CACNA1A Foundation to transform the lives of those living with CACNA1A-related disorders. 

What started as a grassroots effort has exploded into a global movement. Last year, 775 participants across 30 states and 9 countries joined forces to drive awareness and funding. This year, we’re going bigger.

Our 2026 Goal: $150,000

Every registration fee and donation goes directly toward scientific research and family support. Your support fuels our mission to bridge the gap between scientific discovery and daily relief. We are focused on:

  • Identifying Treatment Pathways

  • Enhancing Quality of Life

  • Driving toward a Cure

How our 5k Run, Walk, or Roll Event Works:

The beauty of a virtual 5K is that there are no boundaries. You choose the starting line.

  • Participate From Anywhere: Your neighborhood, a local track, or your favorite trail.

  • Move Your Way: Run, walk, or roll. This is a fully inclusive event designed for all abilities.

  • Choose Your Time: Complete your 5K (3.1 miles) at any point - preferably during the weekend of May 16th and 17th.

Gather Your Community

While we are physically apart, we are socially connected. We encourage you to:

  1. Form a Team: Invite friends, family, and coworkers to join your mission.

  2. Pick a Spot: Meet at a local park, school, or community center to complete your miles together.

  3. Share the Journey: Use the hashtag #CACNA1A5K to see your photos featured on our global map!

Ready to make a difference?

Every dollar raised brings us one step closer to treatments and cures for those impacted by CACNA1A-related disorders.

Three Ways to Support this Worldwide Fundraising and Awareness Building Event:

Register
Become a Sponsor
Donate