0
Skip to Content
CACNA1A Foundation
Learn About CACNA1A
What is CACNA1A?
CACNA1A-Related Disorders
Understanding Variant classification on a Genetic Report
Key Terms
Webinar Series
Family & Scientific Conference 2024
Family & Scientific Conference 2022
Family & Scientific Conference 2021
Families & Caregivers
Newly Diagnosed
Participate in Research
Contact Registry
CACNA1A Champion Stories
Cure Club
Submit Your Story
CACNA1A World Map
Research
Research Goals
Global Research Network
Research Grant Program
Research Grant Funding Recipients
Biobanking
Could it be CACNA1A? Free Genetic Testing
Get Involved
Community Conversations
Ways to give
Events
Fundraising
Awareness Day: March 19
2025 Run, Walk & Roll
5 Boro Bike Tour 2026
Shop our CACNA1A Store
About Us
Mission
Board and Leadership
Scientific & Medical Advisory Board
Global Ambassadors
Transparency
Partners
News and Press
Careers
Contact Us
Resources
Newly Diagnosed
Clinician Resources
Hemiplegic Migraine Resources
Find a Physician
Informational Handouts
Scientific & Medical Journal Articles
Safety
School
Resources and Funding for Families
Newsletter
Blog
Donate
CACNA1A Foundation
Learn About CACNA1A
What is CACNA1A?
CACNA1A-Related Disorders
Understanding Variant classification on a Genetic Report
Key Terms
Webinar Series
Family & Scientific Conference 2024
Family & Scientific Conference 2022
Family & Scientific Conference 2021
Families & Caregivers
Newly Diagnosed
Participate in Research
Contact Registry
CACNA1A Champion Stories
Cure Club
Submit Your Story
CACNA1A World Map
Research
Research Goals
Global Research Network
Research Grant Program
Research Grant Funding Recipients
Biobanking
Could it be CACNA1A? Free Genetic Testing
Get Involved
Community Conversations
Ways to give
Events
Fundraising
Awareness Day: March 19
2025 Run, Walk & Roll
5 Boro Bike Tour 2026
Shop our CACNA1A Store
About Us
Mission
Board and Leadership
Scientific & Medical Advisory Board
Global Ambassadors
Transparency
Partners
News and Press
Careers
Contact Us
Resources
Newly Diagnosed
Clinician Resources
Hemiplegic Migraine Resources
Find a Physician
Informational Handouts
Scientific & Medical Journal Articles
Safety
School
Resources and Funding for Families
Newsletter
Blog
Donate
Folder: Learn About CACNA1A
Folder: Families & Caregivers
Folder: Research
Folder: Get Involved
Folder: About Us
Folder: Resources
Donate
Back
What is CACNA1A?
CACNA1A-Related Disorders
Understanding Variant classification on a Genetic Report
Key Terms
Webinar Series
Family & Scientific Conference 2024
Family & Scientific Conference 2022
Family & Scientific Conference 2021
Back
Newly Diagnosed
Participate in Research
Contact Registry
CACNA1A Champion Stories
Cure Club
Submit Your Story
CACNA1A World Map
Back
Research Goals
Global Research Network
Research Grant Program
Research Grant Funding Recipients
Biobanking
Could it be CACNA1A? Free Genetic Testing
Back
Community Conversations
Ways to give
Events
Fundraising
Awareness Day: March 19
2025 Run, Walk & Roll
5 Boro Bike Tour 2026
Shop our CACNA1A Store
Back
Mission
Board and Leadership
Scientific & Medical Advisory Board
Global Ambassadors
Transparency
Partners
News and Press
Careers
Contact Us
Back
Newly Diagnosed
Clinician Resources
Hemiplegic Migraine Resources
Find a Physician
Informational Handouts
Scientific & Medical Journal Articles
Safety
School
Resources and Funding for Families
Newsletter
Blog

Informational Handouts

For Professionals

These may be used by professionals in a clinic setting to give to newly diagnosed families

Brochure About CACNA1A and the CACNA1A Foundation
Flyer
Guide to CACNA1A-related Hemiplegic Migraine
Brochure about CACNA1A & Eye Movement Disorders (For Ophthalmologist)

For Families

These may be used by families to give to their medical providers to understand more about CACNA1A-related diseases.

Brochure for Families to Give Professionals
Brochure about Hemiplegic Migraines
Brochure about CACNA1A-related Ataxias
Toolkit for a new doctor/neurology appointment
Toolkit for a new doctor/neurology appointment in Spanish
CACNA1A Guide in Portuguese
CACNA1A Guide in Russian

CACNA1A Foundation

CACNA1A Foundation is a parent-led 501(c)(3) non-profit. We are dedicated to creating awareness and finding a cure for CACNA1A genetic variants.

info@cacna1a.org

CACNA1A Foundation, Inc.

31 Point Road

Norwalk, CT 06854 USA

 

About

About CACNA1A
Natural History Study
Privacy Policy

Research

Participate in Research
Research Goals
Grant Program

Get Involved

Donate
Host a Fundraiser
Find a Physician


This site is intended to provide basic educational information about CACNA1A-related disorders. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard to medical treatment or otherwise based on the information on this web site without first consulting a physician. The CACNA1A Foundation does not promote or recommend any treatment, therapy, institution or health care plan.

The information contained in this site is intended for your general education and information only and not for use in pursuing any treatment or course of action. Ultimately, the course of action in treating a given patient must be individualized after a thorough discussion with the patient’s physician(s).