New York State Ambassadors
Sonjia and Casey Dawley
Sonjia and Casey Dawley live in Syracuse, New York with their son Avery. Avery was born in 2016 and, close to a year later, exhibited a regression in skills, which led to their nearly two-year diagnostic journey. Once diagnosed, the Dawley family fell into an information vacuum, feeling lost and alone. Finding the CACNA1A/Cav 2.1 & Co. Facebook group was wonderful, as they had found about 40 other families who had a similar shared journey.
As Volunteer CACNA1A Ambassadors for New York State, Sonjia and Casey aim to establish a community of and for individuals affected by CACNA1A-related disorders in New York State. Their goal is to build strong relationships with families who are willing to help one another, whether it is through recommending specialists or simply being empathetic listeners.
In addition to his role as a New York State Ambassador, Casey also serves on the CACNA1A Foundation’s Board of Directors, where he oversees the Ambassador Program.