Leo’s Story
Leo is a seven-and-a-half-year-old boy who lives in the north of Lyon, France. He has a younger brother who is six years younger, and Leo enjoys his role as a big brother. He is a sweet, endearing child who easily connects with others and is deeply appreciated by those around him.
History
From an early age, Leo showed significant developmental delays. At teh age of 3 months, following major concerns about his development, he began a long and demanding medical journey. Leo underwent numerous medical examinations and assessments before a diagnosis was finally made. This period was marked by many questions, but also by a strong commitment from his family to ensure he received the best possible support.
Since then, Leo has been accompanied by a wide range of specialists, including physical therapists, psychomotor therapists, speech therapists, and orthoptists - almost every day of the week. He has also benefited from intensive therapy programs (15-day sessions) both in France and in Poland, which have played an important role in his progress.
Leo attended nursery school in a mainstream educational setting. He also took part in extracurricular activities such as gymnastics and judo in a mainstream environment. Thanks to his gentle personality and open nature, he quickly became the “class favorite” among his classmates.
Development and Communication
Loe primarily presents with developmental disorders and ataxia. Although he has made significant progress over the years, he is not yet able to walk. He currently uses a wheelchair and is able to move independently, either by propelling his manual wheelchair or by scooting on the floor when seated.
Leo understands what is said to him, but he has difficulties expressing himself verbally. To support communication, we use French Sign Language (LSF) as well as a POD communication tool specially created by his speech therapist. These tools allow Leo to express his needs, emotions, and choices more effectively and support his social interactions.
Medical Profile
Leo has never experienced epileptic seizures and does not appear to suffer from migraines. His medical examinations, including ECG, X-rays, and MRI scans, have all shown normal results, which is reassuring regarding his overall medical condition.
Education and Therapies
Since May 2025, Leo has been attending an IMP (Medical-Educational Institute), located in the south of Lyon. He has been thriving in this environment for nearly one year.
Every day, Leo travels a little over an hour in the morning to reach the institute and makes the same journey back in the evening. Although these long trips are tiring for him, Leo is happy to go and feels fulfilled in this setting.
At the IMP, Loe benefits from a structured and multidisciplinary approach. He participates in adapted classroom activities, and his medical follow-up is fully managed within the Institute. This coordinated care allows Leo to progress at his own pace in a supportive and secure environment. He also receives regular support from:
Physical Therapy
Occupational therapy
Speech therapy
Psychomotor therapy
What Leo Loves
Leo enjoys going for walks and spending time outdoors. He particularly loves going to the swimming pool, where he feels relaxed and free in the water. These moments bring him joy and help support both his physical and emotional well-being.
Looking Ahead
Leo’s journey is one of resilience, patience, and continuous effort. While his path is different, every step forward-no matter how small-is a true achievement. Leo’s story reminds us that progress takes many forms and that with love, perseverance, and the right support, each child can continue to grow and thrive in their unique way.
