Meet Jayci

Jayci Brumm, 2026 Summer Intern

Jayci joins the CACNA1A Foundation as a Summer Intern, bringing with her a heartfelt passion for rare disease advocacy and patient care. A junior at the University of Notre Dame, she is studying Psychology with minors in Business and Patient Advocacy, with a goal of pursuing a career in mental health counseling.

Jayci's path to the rare disease world began through her father, who worked at a biotech company focused on developing treatments for individuals living with Duchenne Muscular Dystrophy. That early exposure opened her eyes to the profound impact that rare disease research and advocacy can have on patients and families. Her commitment to this work is also deeply personal, as her cousin lives with an extraordinarily rare, one-of-a-kind condition, giving Jayci a firsthand understanding of the unique challenges rare disease families face every day.

She lives in Wellesley, Massachusetts, and is the oldest of six siblings who she treasures time with. Outside of her studies, she loves to travel, read, and stay active. This summer, Jayci is excited to bring her background in psychology and patient advocacy to the CACNA1A Foundation and to support the families and individuals whose lives are shaped by CACNA1A-related disorders.

intern@cacna1a.org