Amy lives in southern California with her husband Mike and their three children. After years of mysterious medical challenges and misdiagnoses, their daughter was diagnosed in 2020 with a CACNA1A variant that also impacts their youngest son. Receiving the diagnosis was both a relief, to finally understand what was causing her medical issues, and scary, to not have a cure. Amy is honored to join the CACNA1A Foundation board and support the amazing work and advocacy the founders have done since starting the Foundation in 2020. She also deeply appreciates the connections to other CACNA1A families through the Foundation.

Amy has a B.A. from Northwestern University and an M.A. from the University of California at Santa Barbara. A former middle school teacher and assistant principal, Amy now works for Education Evolving, an education non-profit as the Director of Teacher-Powered Schools supporting educator teams using collaborative leadership models at their sites.

Amy@cacna1a.org