Held every two years, the CACNA1A Foundation’s Family Conference unites our global community—families, scientists, and clinicians—to learn, connect, and work together toward a brighter future for everyone affected by CACNA1A-related disorders.
This convening brings together everyone dedicated to improving the lives of those affected by CACNA1A-related disorders—patients, families, caregivers, clinicians, researchers, and industry partners alike. It’s a unique opportunity to learn from each other, build relationships, spark collaboration, and share ideas that move our community forward. Here, connections thrive, and the strength of the CACNA1A community shines brighter than ever.
LOCATION: Houston, TX
Registration, travel scholarship & childcare info, the hotel block link, and all other conference details coming soon!
If you would like to join the 2026 conference planning team, please email Shira Johnson at shira@cacna1a.org
We hope to see you in 2026!
Tentative Schedule:
July 9th - Clinical intakes will be ongoing all day for our CACNA1A Clinical Assessments Research Study (C-CARS). Individuals with CACNA1A will have the opportunity to participate in a variety of assessments - focused on balance, coordination (ataxia and dystonia), and eye movements - to help inform clinical care.
July 10th - Family Conference: Clinical Care, Research, and Genetics - These sessions will feature opportunities to learn more about symptoms and best practices in clinical care from expert neurologists, updates on the latest CACNA1A research from the CACNA1A research network, and findings from the CACNA1A Natural History Study.
July 11th - Family Conference: Family Support - The family sessions will feature information and resources to help patients and families navigate the challenges of CACNA1A-related diseases across a number of topics, as well as provide opportunities to strengthen connections and support across the community.
Stay tuned for information about available appointments at the CACNA1A Multidisciplinary Clinic at UTHealth Houston.